Dave de Burgh wanted to be an artist and speak French, but Fate saved him and pointed him in the direction of writing. He is a bookseller, so-parent to three wonderful Pekingese “kids,” reads Speculative Fiction voraciously, and is the luckiest guy in the world because he has a blonde, blue-eyed woman in his life who supports his need to write and be crazy.
He lives in Pretoria, South Africa, and when he’s not writing he’s probably secretly laughing at cognitively challenged bookstore-customers. He’s on Blogger, Twitter, WordPress, Facebook, and Instagram, and he’s also a paranormal investigator with Paranormal Research Investigators of Pretoria.
His debut novel, Betrayal’s Shadow, was published on the 25th of April by Fox and Raven Publishing.
When Sarah asked me to write a guest post for this excellent column, I suffered about ten seconds of ‘What do I write about?’ After all, I’m one of the lucky people – I don’t have any ‘disabilities’ at all (except perhaps for not being able to do Math even if I was faced with a firing squad), and I work in retail, which means I don’t get much exposure to people living with disabilities – not as much as, say, someone working in a hospital or community center.
But then I remembered that I am, in fact, very close to people with disabilities, and that I have been for years. You see, my girlfriend works with the deaf – she’s a teacher at a school for the deaf, and she straddles both worlds. Before I met Leana I had only the most basic (and biased) knowledge of the deaf community.
I knew that I couldn’t communicate with them, since I never had the need to learn Sign Language. I knew that they were ‘louder’ than the rest of us, since they couldn’t hear themselves. And I knew for a fact that they were one of the most marginalized groups in South Africa.
The first time I had a face-to-face encounter with a deaf person ended up being one of the most illuminating experiences of my life – his name is Johan, and we struck up a conversation while having a cigarette. Yep, we chatted. You see, I found out that you don’t need to know Sign Language to be able to communicate with a deaf person. After all, how easy is it to explain the shape of a house, or a car, or a dog, or mime writing something down, or running or eating? Not difficult at all. How difficult is it to explain or mime what you love, what your hobbies are? I read a lot – easy. I’m a big dinosaur fan – easy. Think about it – you might think you look like a complete idiot for acting out these things, but you are communicating. It takes effort, and imagination, and a certain loss of ego, sure, but it can be done. Just because the hearing community bases communication of hearing what a person has to say doesn’t mean that we can’t communicate with the deaf. The only problem that we come up against is an unwillingness to try.
Another thing that counts against us (the hearing community) is the absolutely incredibly stupid opinion we of the deaf – most of us think they’re dumb. You see, the deaf verbalize, too, but it doesn’t sound right, does it? Our first reaction is to think, “Oh boy, there’s another retard.” And we end up doing everything that we can to not pay attention, and thereby show interest. We utterly and completely forget those times that we communicated something to someone across a crowded room, i.e. all the times we communicated with someone else when verbal communication wasn’t an option. So, the reactions of many people in the hearing community towards the deaf stem from fear.
We’re scared we’ll embarrass ourselves, scared that we won’t be able to explain something properly, scared that people will give us weird looks or walk up to us and very loudly and slowly ask, “ARE. YOU. DEAF?”
That’s another thing to remember, folks – the deaf cannot hear you. Speaking loudly doesn’t work.
So, the question is, why did I chose to write about the deaf for Sarah’s column? That should be clear enough – the deaf live in a world without sound. How strange and special is that? Incredibly so!
Think about it – a deaf person can focus in a way no hearing person can; they don’t unconsciously (or consciously) follow conversations going on in the background; they don’t ‘listen in’ or listen to gossip; compared to us, they see colours more vividly, experience the sense of touch more fully, taste food and drink more exquisitely. They may be bereft of one sense, but their remaining senses are heightened t such a degree that we can’t imagine it at all. I’ve seen deaf people dance at parties, because they can feel the vibrations of the music, they can feel the rhythm. Many hearing people I know can’t dance to save their lives, and they’re not deaf! J
So, yes, the deaf are incredibly special, and they deserve everything we can do to fully include them. I can’t speak about how things are in the UK or USA, but here in South Africa the deaf community is shoved so far into the background that they might as well not exist, and it’s sickening. The only movies with subtitles are foreign-language movies, which excludes the deaf community. Most teachers in most schools haven’t deigned to learn Sign Language, even when they’ve got deaf kids in their classes. Most of the emphasis is placed on forcing the deaf to shape and vocalize words even though they haven’t been fully enabled to communicate in Sign. And because the kids here struggle to communicate, they struggle to learn, too – most deaf kids in South Africa can’t read or write properly, and it’s not through any fault of their own.
The hearing community excludes the deaf in almost every way, and when we don’t, we want them to fit into our world. Shouldn’t we be the ones doing everything we can to include them? Shouldn’t every big-screen movie and every television channel and every YouTube video have subtitles by default? Shouldn’t people working in retail (or in any industry where working with people is a given) be taught Sign, to better communicate with the deaf? Shouldn’t we be doing so much more than we already do?
I’ve been struggling for years to come up with a story where every character is deaf – I think it would be incredibly interesting to explore a Fantasy or Sci-Fi setting without sound. But it’s very difficult, short of copping out and using telepathy. The only instance I’ve encountered a type of sign language in Fantasy was in The Wheel of Time, wherein the Maidens of the Spear use a secret sign language among themselves. The characters weren’t deaf, though. So yes, it would be incredibly difficult for a hearing person to tell a story, using the written work, but excluding sound.
But perhaps I’ve been looking at this the wrong way – perhaps what is needed is for us to let the deaf know and understand that they, too, are storytellers. How special and strange would it be to read an Epic Fantasy tale, written by a deaf person, from the point of view of a character that hasn’t ever experienced sound? Something to think about, eh?
And I sincerely hope that a deaf person is reading this and has been writing a tale that we will one day read.
So, the deaf – the strange world they live in is a world that hearing people have mostly excluded them from, and they are incredibly special, and have special needs. I don’t feel sorry for them – I respect them, and am in awe of what so many of them have accomplished in a world that places such a massive emphasis and importance on sound.
It’s way past time that the hearing world found and implemented as many ways as possible to include them as fully as possible.